Main principles of organizing comprehensive care for persons with autism spectrum disorders
https://doi.org/10.21045/2782-1676-2021-2-1-47-55
Abstract
The purpose of this article is to form the key principles for organizing comprehensive care for people with mental disabilities. The basis for the development of principles was the experience of implementing the public project “Mental Health” in the Volga Federal District. Based on the experience, the main tasks when including the region in the project will be the organization of continuous support from an early age and throughout life, the organization of interdepartmental interaction, the creation of opportunities for the realization of medical, educational, professional, social and other needs of people with mental disabilities. At the same time, the development and approval at the regional level of a road map, which will identify activities, participants in the assistance program, responsible departments and institutions, as well as deadlines, is of particular importance as one of the main stages in the implementation of comprehensive assistance. Using the principles described in the article in its work, the region can quite effectively create a system of comprehensive assistance to people with mental disabilities, having a minimal backlog in this area.
About the Authors
N. N. Karyakin
Federal State Budgetary Educational Institution of Higher Education «Privolzhsky Research Medical University» of the Ministry of Health of the Russian Federation
Russian Federation
Russian Federation
Nikolay N. Karyakin – D.Sc (Medicine), associate professor
Nizhny Novgorod
O. V. Balandina
Federal State Budgetary Educational Institution of Higher Education «Privolzhsky Research Medical University» of the Ministry of Health of the Russian Federation
Russian Federation
Russian Federation
Oksana V. Balandina – Head of the Mental Health Center
Nizhny Novgorod
E. D. Bozhkova
Federal State Budgetary Educational Institution of Higher Education «Privolzhsky Research Medical University» of the Ministry of Health of the Russian Federation
Russian Federation
Russian Federation
Elena D. Bozhkova – Ph.D. (Medicine), Director of the Institute of Clinical Psychology
Nizhny Novgorod
References
1. Spitsberg I.L., 2018. “The system of continuous support for people with developmental features in the mental sphere. An integrated system of interdepartmental, interdisciplinary long-term support for a person with mental disabilities, Moscow: Downside Up Charitable Foundation, P. 7–34.
2. The concept of comprehensive support for people with autism spectrum disorders and other mental disorders in the Nizhny Novgorod region. URL: http://www.soc52.ru/docs/ocspsd/rca/r_pno_928r_2019.pdf (Accessed: 03/28/2022) https://minsocium.ru/index.php/sotsialnoe-obsluzhivanie‑2/conception-ras/1788-conception-ras-npa (Accessed: 28.03.2022).
3. Spitsberg I.L. “A comprehensive system of accompanying children and young people with autism spectrum disorders and their families throughout the life cycle.” URL: https://autism-frc.ru/ckeditor_assets/attachments/1584/nash_solnechnyy_mir_-_ii_kongress_sopz.pdf (Accessed: 28.03.2022).
4. Autism: wait or act. From the experience of the regions: routes for helping children with ASD in the Voronezh region. URL: https://kuzrc.ru/wp-content/uploads/2019/01/autizm_iz_opyta_regionov_voronezh_2017.pdf (Accessed: 28.03.2022).
5. Abakirova T., Bogdanova N., 2015. Creation of special educational conditions for children with autism spectrum disorders. Guidelines for specialists PMPK Novosibirsk. URL: http://concord.websib.ru/wp-content/uploads/2016/01/Creating-SDA-for-children-with-AS-methodological-recommendations.pdf (Accessed: 28.03.2022).
6. The concept of comprehensive support for people with autism spectrum disorders and other mental disorders in the Khanty-Mansiysk Autonomous Okrug – Yugra until 2020 (with applications). URL: https://docs.cntd.ru/document/446452694 (Accessed: 28.03.2022).
7. Roadmap for the organization and implementation of a system of comprehensive support for people with ASD and other mental disabilities within the framework of the public project of the Volga Federal District “Mental Health” https://mentalpfo.ru/about/projects/obshestvenniye-proekty/mentalnoe-zdorove/ (Accessed: 28.03.2022).
8. Public project “Mental health”, Official website of the Plenipotentiary Representative of the President of the Russian Federation in the Volga Federal District [Electronic resource]. 9 p. URL: http://pfo.gov.ru/projects/metal/ (Accessed: 21.02.2022).
9. Decree of the Government of the Russian Federation No. 1839-r dated August 31, 2016. “On approval of the Concept for the development of early intervention in the Russian Federation for the period up to 2020” URL: https://mintrud.gov.ru/docs/government/180 (Accessed: 28.03.2022).
10. Order of the Ministry of Health of Russia No. 514n dated 10.08.2017. “On the Procedure for Conducting Preventive Medical Examinations of Minors” [Electronic resource]. URL: http://base.garant.ru/71748018/(Accessed: 28.03.2022).
11. Federal Law “On Education in the Russian Federation” No. 273-FZ of December 29, 2012 (last edition) http://www.consultant.ru/document/cons_doc_LAW_140174/ (Accessed: on March 28, 2022).
12. Federal Law No. 442-FZ of December 28, 2013 “On the Fundamentals of Social Services for Citizens in the Russian Federation” https://mintrud.gov.ru/docs/laws/112 (Accessed: on March 28, 2022).
13. Decree of the Government of the Russian Federation No. 2339 of December 17, 2021 “On the implementation of a pilot project for the provision of services for the comprehensive rehabilitation and habilitation of disabled children” http://www.consultant.ru/document/cons_doc_LAW_404276/f4436f8cee442e250c9365bac981ddad92583f80/ (Accessed: 28.03.2022).
14. Kostin I. A. (2009) Reflections on socialization assistance for young people with autistic disorders. Autism and developmental disorders. No. 1. – P. 39–43.
15. Morozov S., Morozova T., 2008. Social and legal aspects of helping people with autism spectrum disorders (a book for parents and professionals) M.: Fedorovets Publishing House, 2008.
Review
For citations:
Karyakin N.N., Balandina O.V., Bozhkova E.D. Main principles of organizing comprehensive care for persons with autism spectrum disorders. Public Health. 2022;2(1):47-55. (In Russ.) https://doi.org/10.21045/2782-1676-2021-2-1-47-55
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